Tuesday, January 27, 2015

John is now on step number 14 in the vent weaning program. These later steps involve being taken off the vent for increased periods of time. Yesterday, he was off of the vent for 16 hours. While he is off of the vent he is hooked up to incoming moist oxygen. Although these periods of time have been much less stressful than those times off of the vent in Louisiana; they  still require effort on John’s part. He has not been able to sleep when he is off of the vent. He will stay on the vent and get some needed sleep today. Today is Charlie’s first birthday. We celebrated with a party at The Little Gym with friends and family this past Sunday. We had hoped to kidnap John from the hospital to attend, but hospital liability rules prevented us from doing so.  The insurance coverage has approved another week here. They will communicate with VIBRA and approve a week at a time if they feel that it is medically warranted.

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